The day started out with my update to everyone…. “We have been up since 2am with a fever and trouble breathing. He is working really hard and even with 3 ventolin masks, there was no improvement and audible wheeze. He was desating on the oxygen level at 30%. We raised it to 100%. They called […] Read more…
One of the hardest days was this day. I was losing hope and decline in Zack’s overall demeanor was so scary. He closed his eyes for 90% of the day and literally had no energy to even sit up anymore. When I would play Elmo DVDs, we wouldn’t even open his eyes to watch his favourite […] Read more…
Facebook post from that day: Damn! Flu plus a lung infection- my little trooper is so sick. Now on nasal prongs for oxygen full time plus fever when meds wear off. Hoping to see an improvement on new antibiotics. Keep praying that we can all be together again. We learned that Zack’s second xray showed […] Read more…
We had been up since 3am. Zack had needed oxygen through the night, his saturation levels were dipping and he needed it to help him breathe. We would alternate between just oxygen blowing by his face, to the mask on him. He looked so weak and I tried my best to just put my arms around him and […] Read more…
I can remember physically seeing the decline in my sweet brave son starting that day. It was apparent that the antibiotics were not working and now it was becoming clear that it was likely a virus or something else at play in his fragile body. The doctors visited hourly it seemed, trying to find what might […] Read more…
Zackie and his Auntie Libbie Today was the day that Zack’s amazingly loving Godmother, Auntie Libbie, came to give me a break from the Emergency room where we had already spent almost 24 hours. I was so tired and mostly I need to run out and get some tea at Starbucks! She brought me some food […] Read more…
Zack was so sick. It had been days since either of us slept and I was a zombie. We had been alternating between rocking in the glider while I hummed “Elmo’s World” or snuggling in our bed watching multiple Elmo episodes on the PVR. I could tell that he had what “could” turn out to […] Read more…
This year I have struggled with this holiday. For obvious reasons. I have so many things to be thankful for…I know that for sure. But with such an immense sadness it is a chore to really let my heart feel grateful. It’s helpful for me to write these down and share them with you. I’ve […] Read more…
These are my memories of today’s reading….from an emotionally draining but amazing visit with Sandy Wiltshire, a medium who lost her daughter years ago and studied to become a spiritual woman. She did the reading in her house, she recorded it, had lots of kleenex. Her book was the first one that I read after […] Read more…
Would you believe that of all episodes that I choose to watch with Ty, it was one about Sue losing her sister, Jean? Her sister with special needs. I could totally relate to how the Glee kids wanted to honour Coach Sylvester’s unique and wonderful sister- “You told us that Jean was so special, so […] Read more…