I can remember physically seeing the decline in my sweet brave son starting that day. It was apparent that the antibiotics were not working and now it was becoming clear that it was likely a virus or something else at play in his fragile body. The doctors visited hourly it seemed, trying to find what might […] Read more…
Zackie and his Auntie Libbie Today was the day that Zack’s amazingly loving Godmother, Auntie Libbie, came to give me a break from the Emergency room where we had already spent almost 24 hours. I was so tired and mostly I need to run out and get some tea at Starbucks! She brought me some food […] Read more…
Zack was so sick. It had been days since either of us slept and I was a zombie. We had been alternating between rocking in the glider while I hummed “Elmo’s World” or snuggling in our bed watching multiple Elmo episodes on the PVR. I could tell that he had what “could” turn out to […] Read more…
This year I have struggled with this holiday. For obvious reasons. I have so many things to be thankful for…I know that for sure. But with such an immense sadness it is a chore to really let my heart feel grateful. It’s helpful for me to write these down and share them with you. I’ve […] Read more…
Our road trip finally reached the destination that inspired the entire two week vacation. We wanted to live out our original plans for Zack to meet Elmo at Sesame Place in Pennsylvania- in his absence, but with his spirit with us, we still wanted to fulfill this wish. The first night we watched the incredible […] Read more…
I learned so much on our recent family vacation…about my boys, my amazing husband and even myself! What an awesome two weeks we had to spend time together, make wonderful memories, share some magical moments, remember Zackie and most of all, just have some much needed family fun! I learned to let go and have […] Read more…
Would you believe that of all episodes that I choose to watch with Ty, it was one about Sue losing her sister, Jean? Her sister with special needs. I could totally relate to how the Glee kids wanted to honour Coach Sylvester’s unique and wonderful sister- “You told us that Jean was so special, so […] Read more…